Thursday, September 8, 2011

Beat LQT


There comes a moment in everyone's life when the realization hits....you are not invincible.  It is typically brought on by some sort of tragedy, whether it be a car wreck, a sudden illness, a freak accident or any number of events which make you see the true fragility of life.  For me I had known this day would come but hoped, albeit selfishly, that this wouldn't happen until I was older and better equip to deal with such a situation.  Sudden changes in any form or fashion have never been my strong suit and I typically seem dazed by the information until my brain can wrap itself around whatever mystery I am trying to comprehend.  What I recently learned is that though these situations do happen they don't always have to end tragically.  It was the best silver lining of any story I have ever heard and drove home one small fact.....whatever "it" is, whatever you call "it", there is a higher power out there watching over us all and faith in that divine entity is a gift for which no one should take advantage.

A couple of months ago I got an email from a friend sharing a story no one ever wants to hear about a loved one.  Patrick had email a group of people to fill them in on what had recently happened to his wife, and my dear friend, Joanie.  Joanie, who had had their first child only weeks before, was at a board meeting at work and had what was believed to be a seizure, followed by heart complications.  By the grace of God there was a doctor in the meeting as well who was able to do CPR on her until the paramedics arrived.  After many tests and a stay in the hospital away from her family and newborn baby, it was determined that Joanie had Long QT Syndrome, a heart rhythm disorder that can potentially cause fast, chaotic heartbeats sometimes lasting so long it can cause sudden death.  Mainly detected through genetic testing, this disorder can be treated for those with the ability and resources to have such testing.  For those who can't afford these tests or do not have them availbale, such outcomes as Joanie's are not likely.  It is because of the miracle that was Joanie's situation, that my eyes were open to Long QT Syndrome.

To learn more about this disease please visit the Mayo Clinic and to donate to increase awareness and proper testing for those in need please visit the following website and reference Long QT Syndrome.

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